Spina bifida myelomeningocele an annotated
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Research from Annotated Bibliography:
Search, G. M. (2003). End result in people with open spina bifida at age 35: Possible community-based cohort study. BMJ: British Medical Journal, 326(7403), 1365-1366.
doi: 10. 1136/bmj. 326. 7403. 1365
A survey of surviving adults with spina bifida myelomeninocele was done. The study checked out multiple areas of the person’s existence including hospitalization, independence of lifestyle, associated health problems, and present level of disability. Studies of adults with spina bifida weren’t well displayed in the bigger field of research; as such, this article gives invaluable observations into the recurring care that is required for making it through patients.
Lindgren, C. T., Burke, M. L., Hainsworth, M. A., Eakes, G. G. (1992). Chronic misery, woe, anguish:
A life-span concept. Scholarly Inquiry intended for Nursing Practice, 6(1), 27-40. Retrieved Apr 1, 2011, from http://www.questia.com/PM.qst?a=od=5035235041
A more global perspective about how parents of youngsters with persistent illness channel their grieving. The article tackles myelomenginocele in terms of psychological effects it has on families. That briefly address the serious impact from the severe handicap of a kid and talks about coping approaches.
Moretti, M. E., Bar-Oz, B., Deep-fried, S., Koren, G. (2005). Maternal hyperthermia and the exposure to possible neural pipe defects in offspring. Epidemiology, 16(2), 216-219. doi: 10. 1097/01. ede. 0000152903. 55579. 15
This content concerns a systematic review of a lot of studies in myelomeningocele in the interest of determining if the mother’s substantial body temperature could cause risk of an infant developing the disorder in utero. The study found that mother’s hyperthermia performed increase risk.
Norup, M. (1998). Limits of neonatal treatment: A survey of attitudes inside the Danish inhabitants. Journal of Medical Ethics, 24(3), 200-206. doi: 15. 1136/jme. twenty four. 3. 200
Similar to the Canadian study recently discussed, this is a look at the controversy lurking behind life-prolonging treatment from the point of view of Danish citizens. A survey was sent out to measure whether or not the general public felt that newborns with myelomeningocele should be kept alive simply by treatment, taking into account parental wants, severity of condition, and quality of life in instances where treatment had not been possible. This article is an interesting exploration in cultural views on impairment.
Parkin, P. C., Kirpalani, H. M., Rosenbaum, P. L., Fehlings, DH, Truck Nie, a., Willan, a.
R., Ruler, D. (1997). Development of a health-related quality of life instrument for use in children with spina bifida. Quality of Life Research, 6(2), 123-132. Retrieved
Apr 1, 2011, from http://www.jstor.org/stable/4035333
Through the use of methodized interviews, this study dedicated to the quality of existence of children with myelomeningocele. This article admirably got aim at collecting data with regards to a child’s perspective of his / her health.
Wickelgren, I. (1989). Spina bifida: Paralyzing fluid in the tummy? Science Reports, 135(22)
342. Retrieved The spring 1, 2011, from http://www.jstor.org/stable/3973520
Using the fetuses of research laboratory rats, experts conducted an experiment to ascertain whether contact with amniotic fluid is a risk factor intended for human fetuses to develop myelomeningocele spina bifida. The ability to translate these results to humans is definitely discussed, with both fetal medical procedures and premature delivery given as potential future options.